The Outreach Programme (ORP) has consistently integrated activities for children and adults with cerebral palsy (CP) and neurological problems, as well as for their carers and parents. The ORP specific focus is on programs delivered outside the center, which aim to improve the quality of life for children and adults with CP, equip parents and carers with essential skills, and support family well-being through needs-based activities. The following represent the major services provided and managed by the ORP.
The Outreach Programme (ORP) has consistently integrated activities for children and adults with cerebral palsy (CP) and neurological problems, as well as for their carers and parents. The ORP specific focus is on programs delivered outside the center, which aim to improve the quality of life for children and adults with CP, equip parents and carers with essential skills, and support family well-being through needs-based activities. The following represent the major services provided and managed by the ORP.
The Home Visit services was the first initiative launched by SGCP, Nepal, upon its establishment. Initially, HV services were confined to the valley but have since expanded to various districts across the country. In the Home Visit services, trained rehabilitation facilitators begin by identifying children in their respective areas who are experiencing cerebral palsy and neurological problems. Once identified, they perform thorough assessments, simultaneously informing parents and family members about the child's condition. Subsequently, they develop a personalized rehabilitation intervention plan that addresses each child's specific needs. These plans primarily focus on training in Activities of Daily Life (ADL), including eating, washing, dressing/undressing, and toilet-training, alongside crucial physiotherapy, communication development, and social inclusion to foster long-term independence. Facilitators also prioritize education, preparing children for enrollment in either special or regular schools. They provide essential referrals to the SGCP office and various other organizations for additional technical support. Through this process, carers and family members gain valuable skills and stimulation techniques to benefit their families and communities. Currently, twenty-six rehabilitation facilitators provide regular Home Visit services to 1,500 children and families across nineteen districts in Nepal, spanning from the eastern to the western parts of the country. Among these children, 120 attend regular schools for inclusive education. The HV districts include Ilam, Morang, Dhankuta, Sunsari, Saptari, Solukhumbu, Kavre, Sindhupalchok, Kathmandu Valley (Kathmandu, Lalitpur, Bhaktapur), Tanahu, Chitwan, Nawalparasi, Parsa, Palpa, Rupandehi, Banke, and Bardia, located within five of Nepal's provinces.
SGCP initiated its Day Care Centre (DCC) program in 2009, aiming to offer day care services to groups of children and adults with cerebral palsy and neurological conditions. A key aspect of the DCCs is their operation in partnership with parents/carers and local organizations. At these centers, children are instructed in Activities of Daily Living (ADLs), including eating, washing, and toilet-training, physio. They also receive a foundational education, with computer training offered as opportunities arise. SGCP Rehabilitation facilitators conduct regular visits to the Day Care Centres (DCCs) for two primary purposes: to deliver therapeutic services to the children, and to oversee and train DCC staff and parents in effective rehabilitation interventions. These interventions aim to empower children with the essential knowledge, skills, and attitudes needed to foster increased independence, commensurate with their physical and cognitive capacities. Furthermore, the establishment of a DCC affords parents/carers of children, the invaluable opportunity to pursue employment, confident that their child is receiving appropriate and advantageous care during their absence. At present, twenty-seven Day Care Centres (DCCs) are actively serving communities across the country, with additional centers in the process of being established. These DCCs provide crucial support to over 340 children diagnosed with cerebral palsy (CP) and other neurological conditions, as well as their parents and carers. Notably, a disability-friendly classroom has been completed in Bhaktapur, thanks to land generously donated by parents. Similarly, the classrooms have been completed in Nepalgunj, Banke district and Gramsthan, Morang district within a governmental school, made possible by the support of well-wishers. It's positive news that a new care center has recently been established in Bhimad, Tanahun district, with support from local municipality. In rolling out the Day Care Centre (DCC), SGCP is trialing various organizational structures and models. These variations depend on the level of involvement and commitment from parental groups, other community organizations, and local NGOs. Consequently, SGCP's financial obligations to individual DCCs vary. SGCP aims to ensure that DCCs are established in an operationally and financially sustainable manner. Once established, individual DCCs are encouraged to fundraise to cover running costs. For example, small donors could sponsor a child, purchase a vehicle for transportation, pay for stationery, buy specific equipment, or provide support for drivers and facilitators/assistants.
The SGCP's Carer Support Program is designed to address the significant and often unacknowledged difficulties faced by individuals who care for people with disabilities. The program focuses on empowering these carers through a multi-faceted approach.
The Residential Programme (PK), launched in 2013, offers an intensive rehabilitation effort aimed at maximizing a child's well-being and fostering sustained support by involving carers. In this program, children and their carers (most often mothers) from rural Nepal come to the center for four weeks. During their stay, the child receives all necessary interventions available at the center. The program additionally emphasizes equipping parents/carers with the skills necessary for the care of their children and seeks to empower them to achieve a sense of dignity and ease within their communities. This initiative is structured into two levels: Phulbari, catering to children around the age of five, and Tusa, designed for children below five years of age. Each year, more than 80 children and their respective carers receive substantial benefits from this program.
The Residential Programme (PK), launched in 2013, offers an intensive rehabilitation effort aimed at maximizing a child's well-being and fostering sustained support by involving carers. In this program, children and their carers (most often mothers) from rural Nepal come to the center for four weeks. During their stay, the child receives all necessary interventions available at the center. The program additionally emphasizes equipping parents/carers with the skills necessary for the care of their children and seeks to empower them to achieve a sense of dignity and ease within their communities. This initiative is structured into two levels: Phulbari, catering to children around the age of five, and Tusa, designed for children below five years of age. Each year, more than 80 children and their respective carers receive substantial benefits from this program.
This intervention likely provides assistance to carers in developing sustainable income-generating activities, recognizing that financial stability is crucial for their well-being and ability to provide care.
This intervention likely provides assistance to carers in developing sustainable income-generating activities, recognizing that financial stability is crucial for their well-being and ability to provide care.
Carers often neglect their own health due to the demands of their role. This component aims to provide them with access to healthcare services and promote their physical and mental well-being.
Carers often neglect their own health due to the demands of their role. This component aims to provide them with access to healthcare services and promote their physical and mental well-being.
This initiative likely fosters a sense of community and mutual support among carers, allowing them to share experiences, learn from each other, awareness regarding carers issues and advocate for their rights. Regarding this the carers have been providing series of training.
This initiative likely fosters a sense of community and mutual support among carers, allowing them to share experiences, learn from each other, awareness regarding carers issues and advocate for their rights. Regarding this the carers have been providing series of training.
This aspect of the program focuses on providing direct support and respite opportunities for carers, acknowledging their need for breaks and self-care. This initiative is designed to empower carers of children with disabilities, thereby enhancing their overall quality of life. It addresses their social, physical, emotional, and economic aspects, and additionally strives to ensure greater recognition, encourage self-advocacy, and support the creation of specialized services tailored to carers; needs. Through this program, the registration of "Nawa Aagaman Samrakshak Samaj"; was facilitated, establishing it as a non-governmental organization in Bhaktapur district. The Samaj currently boasts around 200 members from the Kathmandu Valley. Structurally, it operates as a three-tiered organization, featuring twenty- two carers’ groups at the foundational level and five Carers Coordination Committees at the oversight level. The Samaj is responsible for managing all activities and orchestrating mobilization across all tiers. Key activities undertaken during this process include awareness and advocacy campaigns, training sessions, health assessments, the management of day care centers, promote savings and livelihood initiatives for carers.
This aspect of the program focuses on providing direct support and respite opportunities for carers, acknowledging their need for breaks and self-care. This initiative is designed to empower carers of children with disabilities, thereby enhancing their overall quality of life. It addresses their social, physical, emotional, and economic aspects, and additionally strives to ensure greater recognition, encourage self-advocacy, and support the creation of specialized services tailored to carers; needs. Through this program, the registration of "Nawa Aagaman Samrakshak Samaj"; was facilitated, establishing it as a non-governmental organization in Bhaktapur district. The Samaj currently boasts around 200 members from the Kathmandu Valley. Structurally, it operates as a three-tiered organization, featuring twenty- two carers’ groups at the foundational level and five Carers Coordination Committees at the oversight level. The Samaj is responsible for managing all activities and orchestrating mobilization across all tiers. Key activities undertaken during this process include awareness and advocacy campaigns, training sessions, health assessments, the management of day care centers, promote savings and livelihood initiatives for carers.
Carers to Carers is a peer support initiative that connects carers with one another to share experiences, advice, and emotional support. Through peer-to-peer support networks where experienced carers can mentor and assist newer ones, building a strong and supportive community. This programme fosters a sense of community among carers, reducing feelings of isolation and helping them navigate the challenges of caring for a loved one with a disability.
Carers to Carers is a peer support initiative that connects carers with one another to share experiences, advice, and emotional support. Through peer-to-peer support networks where experienced carers can mentor and assist newer ones, building a strong and supportive community. This programme fosters a sense of community among carers, reducing feelings of isolation and helping them navigate the challenges of caring for a loved one with a disability.
By implementing these comprehensive interventions, SGCP aims to create an environment where carers are not only recognized for their invaluable contributions but are also equipped with the resources and support necessary to thrive alongside their loved ones with disabilities. This approach seeks to foster a more inclusive and supportive society for both people with disabilities and their carers.
NTC Toll-Free No. | 16600144999 |
Ncell Toll-Free No. | 9801579191 |
Following two helplines are available for carers who can get information needed for any kind of disability and counselling for carers.